Support Pelvic Dysfunction

Support Pelvic Dysfunction
Support Pelvic Dysfunction Charity Website !

Monday 28 November 2011

We are still searching for our 3rd Trustee-How to Apply. :)


Applicants for volunteer and trustee positions:

Please send the following questions filled out to:
help@supportpelvicdysfunction.co.uk

Please note: We have additional meetings with cavos but at this time they are not mandatory for trustees. (trustees may be welcome to come along to some of them, or all at a later date).

Required information via email or post.
POST: Please request corresponding postal address by calling 07721656764 on Mondays OR Fridays, 11am-4pm.
Suggestive advice line open from 10am-5pm on same days.

(The following information is mandatory whether the applicant is known by us or not.)



*If question is starred, it is mandatory.
(If you do not have a landline, please state in answer so question has been answered, however you must have atleast one mobile or telephone number you can put down so we can contact you.)



*Full name:

*Marital Status:

*Date of birth:

*Address and postcode incl town and county:

 Phone numbers:

*Landline:

 Mobile:

*Do you have SPD?

*(only if answered yes to previous question)
When did it occur, date occured mm/yy and if pregnant please state in weeks.

*Other conditions:

*All aids you use: e.g crutches...

*How many children do you have?

*Which child (if during pregnancy) did you develop SPD?

*What interest do you have in the charity your applying for?

*What, in your own words, does this charity do?

*Why do you want to be a volunteer or trustee for support pelvic dysfunction?

 Email address:

*Do you work?

*If you work how many hours a week?

*What qualifications do you have?

*What work experience do you have?

*Have you completed any 1st aid courses, if so when, where and what was issued?

*Have you completed the workbook for Vulnerable adults, if so when and where?

*(This question only for trustee applicants)
 Can you attend 3 mandatory meetings a year?

*What other time (excluding meetings) can you offer the charity?



Volunteers will be welcome to join in meetings if they wish at a later date.

3 meetings a year is mandatory for all trustees, however there may be additional meetings called to discuss important matters as they arise.

This is a start up charity, but will at all times be professionally run.



Thank you for your application and interest.


This is information needed from all people interested in volunteering or becoming a trustee.







Kind Regards,

Mrs. Sarah Dightam

Founder
Support Pelvic Dysfunction
help@supportpelvicdysfunction.co.uk

Sunday 8 May 2011

UPDATE:

We have now added more information on the founder of the website and what we aim to try and do. 
Please help us spread the word about this website and help many more SPD sufferers!

WE NEED YOUR HELP!



Update regarding the charity:

As we are so new and set up by one individual lady and mother, we are working on the paperwork, working on recruiting suitable trustees and will then open the bank account and add the donation side to the charity, we also aim to organise the membership side to it and newsletters as well as the grant system which every member will be given the chance to apply for and depending on how much we receive in donations depends on how many women we can help.

We are sorry you can not donate yet but the Support Sytems are in place and are the most important part of the charity, as we offer one on one individual help to your individual SPD needs.



Thursday 10 March 2011

Feedback:

A Feedback page has been added to our website in which will display the feedback provided to us by the people we have had the pleasure to be able to help.

If you have been helped by us and would love to have your feedback featured on our page please email us at help@supportpelvicdysfunction.co.uk

Our recent feedback:


"I think that this charity is great, i have found lots of information not just via the website but by contacting via e-mail and asking questions. I also feel that even with the amazing support around me that i still feel so alone, having the chance to e-mail Sarah means that i am talking to someone that knows what i am going through and can give me great advice and support. I hope many others can use this charity to help them too.

Many thanks
Lisa "

More feedback will be added as received.

All feedback and names are displayed with the permission from the person who which provided the feedback.

We would like to take this time to THANK all of you for being brave enough to come forth and request our help, you should be very proud of yourselves so keep your chins up and remember we are here to help you throughout, so if you have any more problems do not hesitate to contact us, we are here for the long haul not just for one problem per person.

It's been more than a pleasure to have been able to help those whom we have helped and we look forward to helping more people as awareness of our charity grows.

Please help raise awareness, visit our contact us page for our virtual card to share with your friends and family.

Thank you. 

Kind Regards,

Support Pelvic Dysfunction
www.supportpelvicdysfunction.co.uk
 

Monday 7 March 2011

How Can this Charity Help ME? SPD awareness Campaign?

The founder has been investigating SPD and helping people via support groups online for 2 years, which opened our eyes to the need for this charity.

Since the charity has launched we have helped a number of people in different situations, suffering different symptoms or problems all associated with SPD.

Everyone's problem is different so we have decided to do an example of a made up enquiry that we could help with.

A lady emails us this problem:

Hi Support Pelvic Dysfunction,
My boyfriend is very worried at the time off work he is taking to help me when my SPD symptoms worsen, we are worried he will lose his job, I have already been fired from mine. What can we do?


AND we would reply:

First of all lets look at what can help you (and we would help the lady to manage her SPD and get help for it to make sure she is getting the right treatment for her symptoms) after all if she gets the medical help and it helps improve her SPD she may look at going back to work.

Second, we would explain to her what her partner can use to show his employers that he is a carer for his girlfriend, and we would suggest possible involvement of help services and more.


This is just one example of the help we can give people via email, a lot of people are not familiar with SPD and therefore don't know what's possible as treatments or what their partners or family can do if they need more help than others, especially with mobility.

REMEMBER: SPD may be common in pregnancy but it is not normal and therefore should not just be ignored, and no matter the severity of the SPD ALL women who suffer with SPD and the men (athletes) that develop it, all face mobility problems of some degree, and therefore are all facing losing their independence as they find they cannot do what they used to do and what were daily normalities become daily struggles.

Also Remember, you are not alone and there is help here if you need it.

Please help us with our SPD awareness campaign, as we need to get the word out about the charity and therefore be able to help others!

It only takes a matter of minutes or seconds depending on your internet speed, for you to email your friends our website address or our virtual information card (provided on our website under CONTACT US), or you could make your status our website or even post the virtual information card on peoples profile telling them to pass it on and spread the word.

We are working on some downloadable posters for you to print off and ask your local shops to display or even display in your home windows. And you could email us to receive up to 5 of our cards to share with shops or other people, if you have shown a shop and had permission from that shop to display our cards then we can always send you more cards to give the shop to share.

Little things like this don't take very long to do but go a long way with helping us with our awareness campaign! Why not telephone some shops to see if they'll share our charity cards (like business cards) or even posters or leaflets, as were working on them too.

Whatever you do remember that your helping others as opposed to helping us as your allowing people to gain awareness of us and therefore the people that need us can contact us for help, when perhaps they didn't have anyone to contact before.

We not only focus on SPD during pregnancy or pre pregnancy (it happens) but we also focus on post pregnancy which is very important as those who recover from SPD are all very good stories of hope but are not helpful to those who do not, and it is those who don't recover that need the most help.

Think about it, those who recover can go back to work and do things they used to again (unless the SPD re occurs of course) but those who do not recover are stuck with mobility problems and obstacles on a daily basis, and some need crutches and/or wheelchairs! We need SPD to be a recognised disability - which is something else our charity will be aiming to focus on in future!


I would like to take this time to thank all of those who are supporting our charity and ask you to email us some Feedback that we can display on our website!

Thank you,

Kind Regards,

Support Pelvic Dysfunction
help@supportpelvicdysfunction.co.uk





Sunday 6 March 2011

FAQ! Membership queries:

Recent questions and answers from e-mails and queries received:

#1Question: I would love to join your site, how can I become a Member?

#1Answer:
Membership applications are being worked on and this will be put in process via post, so all membership forms will need to be posted to you to fill in and sign and send back to us in which using special reference numbers and facilities you will then be able to donate the membership fee online once we have confirmed receipt of your membership forms.We can then match the reference numbers to the forms and send out your special membership packs, as we are working towards a number of grants per year to random selected members, there will be an application pack enclosed with the membership pack for you to be in with a chance of receiving one of these grants. There will be information as to what a member will receive as extra services from the charity as well as information on our aim at giving grants.

The more fundraising and members means the more of a chance we have to register as a charity for a charity number and raising enough to be able to issue grants to a number of members. Even if the number is very small to begin with, helping one is better than helping none. Which is a motto I use when we keep progressing this charity.

Membership cost is aiming to be no more than £5 per annum per member, you can only register in one name, as one person, but it is not limited to one person per household, as many people per household can become members if they feel necessary. We are also looking at encorporating a £5 off per member- which is optional - of a third party company who provides supporting and helpful items that aid pain relief for SPD sufferers whether pregnant or post pregnancy. More information will be provided at the time.

#2Question: What help can I get from you as an individual or as a member?

#2Answer:

As an individual: We can always help you via telephone or email whether you are a member of the site or not.
We will always be here for you to assist you in those ways.

As a member: We give out special membership packs on SPD, These include a little official information card for your wallet to state when you became a member and when your membership will end, It will state your name address and contact telephone number (some of these for you to fill in yourself) and it will explain on the reverse side how SPD affects an individual, so if you find yourself in a crisis you can always show the person that does not understand, the card and then they can contact us if they have any issues including medical professionals as well. (if lost there will be a small fee for replacement cards)

We also are aiming to give out an annual newsletter which may become more frequent, to members, leaflets and documents on SPD as well as a welcome letter and an opportunity to be in with the chance of receiving one of our grants to help you cover treatments like private physio.

We are looking to encorporate a forum facility but that has not yet been investigated enough, and we are discussing whether it be a members only facility or for the public, or even for the public with a section for members only. We will be allowing women to share their stories in a forum themselves, or if not possible, advise members to set up their own blog site to allow them to share their stories as we believe it is important that they spread the awareness of SPD.

It will be at the discretion of the members whether they link to Support Pelvic Dysfunction or mention us but although we are not and will not be affiliated with the blogs or the content we will and do allow people to mention us and/or link to us aslong as it is in a professional mannor and is never defamatory or offensive.

As a charity we rely on the support of the people we help to be able to continue as a charity and offer such facilities and help.

We are looking at being able to assist members struggling with SPD and being acknowleged by writing a letter for them to show to their health professionals including the suggestive advice we advise as the next steps to help the member achieve the treatment they need for their SPD.

For members and/or individuals: We are working on some official self help guides based on the founders 2 years experience with investigating and experiencing SPD, these guides will be available to all for a very small fee plus P&P which we are looking at £2 each plus P&P again via the donating system if it allows notes to be written via paypal of course in which we would ask the person paying to mention the guide name and/or reference number when purchasing to enable us to post it to their address.



Kind Regards,


Support Pelvic Dysfunction

www.supportpelvicdysfunction.co.uk

Welcome to the official blog page for England Charity Support Pelvic Dysfunction:

Welcome to the official blog page for England Charity Support Pelvic Dysfunction:

We are very excited to have launched our new charity and we are in the process of developing this charity and preparing it to be able to incorporate memberships and online donation processes, amongst much more.

We are excited to announce that we have a new email address which is: help@supportpelvicdysfunction.co.uk

Our temporary email addres which was SPDcharity@hotmail.co.uk will be kept as a back up email address incase of emergencies, so do not worry as we will still receive your email.

Those whom email the hotmail one in future will be asked to re-email help@supportpelvicdysfunction.co.uk as part of our rules.

As a charity and website we do have rules, policies and procedures, as we aim to make sure everyone is treat fairly and equally.

We are very sorry of any inconvenience any rules may cause, for example you can only call us on Mondays and Fridays, but we do have important reasons for the rules we have put in place.


REMEMBER: to follow this page for future updates and developments with our charity, as all new developments will be announced on this site.



Thank you to everyone for their kind support and I am pleased to have helped a number of individuals and families since the launch of this charity even though we are not set up to receive donations as of yet!

Keep spreading the word and keep sharing your story and we will be more than happy to keep helping you on your way to receiving the right treatment for you and your SPD, and/or other pregnancy complications.


Kind Regards,

Support Pelvic Dysfunction
www.supportpelvicdysfunction.co.uk